Healthy living, healthy parenting, healthy gardening. One Family's approach to off grid living.

I may as well start at the start.

Suddenly, as I was driving my mood lifted and I felt genuinely happy, a calm happy, safe secure.

Finally. It’s been 6 days since I have felt much of anything, which was a mixed blessing. I just had a fairly major medication overhaul. The first few mornings I awoke with a weight in my heart and by late morning felt emotionally flattened which stayed for several hours. Then I was hit by how productive I felt.

Last month during my cycle I just didn’t post for 3 weeks. During those weeks, I had a darkness. Everything felt clouded with grief and my chest ached. Nothing had changed around me. Plenty of things changed inside me. I have Bipolar Mood Disorder. Which basically I have had two major depressions and one major manic period. To me, it doesn’t feel like a mood disorder- it feels like an energy disorder. Lucky? For me my moods have a bit of a schedule:

When I ovulate Severe migraines with auras. Hyper sensitive to criticism. Weepy.

A few days later- really “up” mood, go go go, edgy, snappy. I start getting OCD about this time- about whatever I happen to be into at the time. Usually in a productive way.

After a few days of high production, little sleep I fall into a darkness. I ache. I retain water. I am cold all the time. Migraine auras bring me in and out of consciousness, the pain is so intense. I have great difficulty paying attention to my surroundings. I just want to sleep. I must surely die, I think. For 3-4 days I am in agony and misery. It hits like a wave.

People tell me that I don’t seem bipolar to them.

That’s because I stay away from people I know when I am depressed. My moods change so quickly that only after 14 years of menstruation have I finally begun to chart in detail.

The last 7 years have been insane, with 5 pregnancies (two early miscarriages, which I am at peace with, but mentioning because that was a special hormonal roller coaster in and of itself) and continuous nursing. During my first miscarriage, I was just 20 and Mr. T and I were relatively new to our relationship. I went crazy. Totally bat shit crazy. I tried to use mind control to plead people to help me. I wanted to die. I felt as though I was dying. I had severe constant nausea and vertigo and completely delusional that the baby must not have died. There was some mistake. I now know I was rapid cycling and had amazingly severe migraines.

I was convinced deep inside that I was schizophrenic (which heck, maybe I am) and I was scared as hell. My brain was constantly moving, flipping through images like a Rolodex. Mr. T yelled and stomped his feet and was generally angry to be around.

Mr. T and I parted ways for almost a year shortly after that. I think we were both scared of how badly the whole thing went down.

I tried to find Jesus with all of my heart. I opened it all the way up. When I couldn’t find Jesus I looked for God.

I felt immense solace in communion and prayer. I went to church several times a week and to a bible study here and there.

Months later, after a 10 day silent Buddhist retreat I found atheism, which has been a comfort to me over the years.

During the Buddhist retreat I found the solace I was looking for in meditation.

I also came to terms with the fact that I would marry Mr.T, and left the retreat no longer resenting him, much. We had not spoken to one another for ages.

I didn’t even really like him. Seriously.

But I was drawn to him and I swear, we are just starting to like each other now- and it’s been 8 years. We share the same vision, and we just happen to be the person who is in the others perfect future, so I suppose we rode it out hoping we would get to where we are now, still alive and still married.

I am sharing my story upon multiple requests. I am at a place where I can write about it now. I didn’t write, journal, take may pictures, make art for most of my motherhood journey. I was just too damn tired. I don’t regret it really, because I carry it here in my heart. And there is a lot I have forgotten and would rather keep that way. I’m at a place where I don’t need to be worried about. I have a great doctor, a supportive husband, amazing parents and extended support. After 7 months of mood stabilizing meds, the cocktail still isn’t quite right. I cycle between low production and high production and feeling like I am dying and like it might possibly be the best day of my life. I’m sorta striving for the middle ground, which is a bit confusing, because there are days truly, many of them, where I feel exceptionally great, and in between I’m very good at faking it, which feels like many tiny little lacerations on my spirit. Other days I can’t get out of bed.

I’m pretty sure that pre puberty I was quirky, but not yet crazy. At 16 I went on the pill because I was having really bad cycles. Right before and during my period I had/have hot and cold flashes, aching kidney feeling, nausea, migraine auras (which I just just figured out what they were. At that time I thought everyone’s vision was like that. I frequently have had the sensation I am going blind and dark bars slide in from the side. For me auras are strobing lights, bars, boxes. A true aura of fading rainbow colours around objects. I have a strong sensation of dejavu and the feeling of watching the scene from outside of it. I frequently have a hard time telling what was reality and what was an idea or dream. I see things move out of the corner of my eye and hear buzzes, beeps and other non specific sounds. Today I swore I could hear a cat meowing loudly, but the kids swore it was quiet. I’m pretty sure most of this is migraine related, because I have some rx meds for migraines that take care of all of these symptoms.

I literally feel like I am going insane after a few days of migraines. Last month I waited 17 days of on again off again migraines until I went to the ER and begged for help. The little dissolve in your mouth discs cost $20-$60 per dose, depending on if the first ones work, or the migraine comes back 8-12 hours later. I am having a brain freeze on what it is called….Even after I have taken it, it is still extremely difficult to keep my attention focused.

 

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3 responses

  1. Nanny

    You are brave to share this, Cheryl and I truly hope that you can find a course of meds that will help you find an even keel. Or at least a moderately wobbly keel. 🙂

    I had migraines from the time I was 16. After I got into my 30s the intensity lessened. In my 40s I’d only get the aura – flickering kaleidoscopes in arcs coming in from the outside of my vision. Even without the headache they’d leave me exhausted. In my 50s I have pretty much stopped having migraines and auras. They were hormonally related for me for sure.

    love S.

    June 8, 2011 at 7:07 pm

  2. oh boy. struggles. it is very good of you to be so honest out in the open. breaking down the stigma of mental illness simply by talking about it! and it NEEDS to be talked about
    there are SO many people out there struggling with these strange confusing symptoms – bipolar, manic, chemical imbalance, rollercoaster syndrome. i have 3 very close people to me who are in it deep. one of which lives with me and I love him, but its so hard some days. its been wiked wild the last couple months. he is just going to delve into the medicated world tomorrow. so we will see what kind of effect this will bring.

    and your migraines! whoa. ouch. well, Berwyn’s dad who is a doctor says take 4 Tylenol when you get a headache. maybe better than a 20-40 dollar dose! that’s steep!

    we get dealt our cards when we are born and now we spend our whole lives figuring out what to do with them…

    I wish you some middle ground.

    you are lovely and loved and a great, strong person who I miss!

    I am always over here if you ever need to just talk or write to someone.

    take care of yourself.

    :0)

    June 8, 2011 at 11:24 pm

  3. G-Unit

    I love you Cheryl!!! HUGS XOXO

    June 9, 2011 at 7:16 am

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