Suddenly, as I was driving my mood lifted and I felt genuinely happy, a calm happy, safe secure.
Finally. It’s been 6 days since I have felt much of anything, which was a mixed blessing. I just had a fairly major medication overhaul. The first few mornings I awoke with a weight in my heart and by late morning felt emotionally flattened which stayed for several hours. Then I was hit by how productive I felt.
Last month during my cycle I just didn’t post for 3 weeks. During those weeks, I had a darkness. Everything felt clouded with grief and my chest ached. Nothing had changed around me. Plenty of things changed inside me. I have Bipolar Mood Disorder. Which basically I have had two major depressions and one major manic period. To me, it doesn’t feel like a mood disorder- it feels like an energy disorder. Lucky? For me my moods have a bit of a schedule:
When I ovulate Severe migraines with auras. Hyper sensitive to criticism. Weepy.
A few days later- really “up” mood, go go go, edgy, snappy. I start getting OCD about this time- about whatever I happen to be into at the time. Usually in a productive way.
After a few days of high production, little sleep I fall into a darkness. I ache. I retain water. I am cold all the time. Migraine auras bring me in and out of consciousness, the pain is so intense. I have great difficulty paying attention to my surroundings. I just want to sleep. I must surely die, I think. For 3-4 days I am in agony and misery. It hits like a wave.
People tell me that I don’t seem bipolar to them.
That’s because I stay away from people I know when I am depressed. My moods change so quickly that only after 14 years of menstruation have I finally begun to chart in detail.
The last 7 years have been insane, with 5 pregnancies (two early miscarriages, which I am at peace with, but mentioning because that was a special hormonal roller coaster in and of itself) and continuous nursing. During my first miscarriage, I was just 20 and Mr. T and I were relatively new to our relationship. I went crazy. Totally bat shit crazy. I tried to use mind control to plead people to help me. I wanted to die. I felt as though I was dying. I had severe constant nausea and vertigo and completely delusional that the baby must not have died. There was some mistake. I now know I was rapid cycling and had amazingly severe migraines.
I was convinced deep inside that I was schizophrenic (which heck, maybe I am) and I was scared as hell. My brain was constantly moving, flipping through images like a Rolodex. Mr. T yelled and stomped his feet and was generally angry to be around.
Mr. T and I parted ways for almost a year shortly after that. I think we were both scared of how badly the whole thing went down.
I tried to find Jesus with all of my heart. I opened it all the way up. When I couldn’t find Jesus I looked for God.
I felt immense solace in communion and prayer. I went to church several times a week and to a bible study here and there.
Months later, after a 10 day silent Buddhist retreat I found atheism, which has been a comfort to me over the years.
During the Buddhist retreat I found the solace I was looking for in meditation.
I also came to terms with the fact that I would marry Mr.T, and left the retreat no longer resenting him, much. We had not spoken to one another for ages.
I didn’t even really like him. Seriously.
But I was drawn to him and I swear, we are just starting to like each other now- and it’s been 8 years. We share the same vision, and we just happen to be the person who is in the others perfect future, so I suppose we rode it out hoping we would get to where we are now, still alive and still married.
I am sharing my story upon multiple requests. I am at a place where I can write about it now. I didn’t write, journal, take may pictures, make art for most of my motherhood journey. I was just too damn tired. I don’t regret it really, because I carry it here in my heart. And there is a lot I have forgotten and would rather keep that way. I’m at a place where I don’t need to be worried about. I have a great doctor, a supportive husband, amazing parents and extended support. After 7 months of mood stabilizing meds, the cocktail still isn’t quite right. I cycle between low production and high production and feeling like I am dying and like it might possibly be the best day of my life. I’m sorta striving for the middle ground, which is a bit confusing, because there are days truly, many of them, where I feel exceptionally great, and in between I’m very good at faking it, which feels like many tiny little lacerations on my spirit. Other days I can’t get out of bed.
I’m pretty sure that pre puberty I was quirky, but not yet crazy. At 16 I went on the pill because I was having really bad cycles. Right before and during my period I had/have hot and cold flashes, aching kidney feeling, nausea, migraine auras (which I just just figured out what they were. At that time I thought everyone’s vision was like that. I frequently have had the sensation I am going blind and dark bars slide in from the side. For me auras are strobing lights, bars, boxes. A true aura of fading rainbow colours around objects. I have a strong sensation of dejavu and the feeling of watching the scene from outside of it. I frequently have a hard time telling what was reality and what was an idea or dream. I see things move out of the corner of my eye and hear buzzes, beeps and other non specific sounds. Today I swore I could hear a cat meowing loudly, but the kids swore it was quiet. I’m pretty sure most of this is migraine related, because I have some rx meds for migraines that take care of all of these symptoms.
I literally feel like I am going insane after a few days of migraines. Last month I waited 17 days of on again off again migraines until I went to the ER and begged for help. The little dissolve in your mouth discs cost $20-$60 per dose, depending on if the first ones work, or the migraine comes back 8-12 hours later. I am having a brain freeze on what it is called….Even after I have taken it, it is still extremely difficult to keep my attention focused.
Trying to remember the psych ward and all the rest
gives me post-post traumatic stress
I wonder: tall ferns, low moss
If you fell in love with me on the island,
a manic runaway.
See through dress and casual sex,
Bob Dylan in a bakery,
beaches & my VW
An old boyfriends mirror-
In our eyes we saw the rest of our lives.
You’re still here.
She was standing in the middle of the common area yelling. Swearing. Waving her arms about when I met her.
I could see it was an act, and yet it wasn’t an act. It was go hard or go home.
Later, we danced in the courtyard, in our castle made of chalk. I ripped her shirt down the sides, took the arms off and tied it down in strips from breast to hip. The short sleeve she pulled over her head and let hang down in a triangle like some sort of psych ward cowboy fashionista. She told me Jupiter was not her real name. Her story was rough, daughter of a hippie druid and a small city rockstar, left alone with her brain and sedated into mushy when they caught her.
She was 17 and in her eyes I saw my eyes. I could have been lost in this world, without the love of my parents. Only a boy came to visit and she was forward, this woman child. She had him. She would probably destroy him. She was wild, and didn’t want to be tamed. She gave me her rock and showed me her drawings. She asked if I thought she was crazy.
In a hospital room in reality or a dream she tore a stream from a mattress. Made red foam roses and flooded the place. That’s how she got here. Fought a police man and screamed at the heavens. She probably bit someone.
In my arms she was a child, eager to please, sad, beautiful and alone. We sat on the floor while she summoned magic and I listened, because listening is good. Like a movie, I watched her story. She carried all she had in her pack.
I ran in the halls. Slowing down past the nurses window so they wouldn’t see me. I ran until my heart was pounding, I was out of breath. Like a caged animal. A lone mama wolf in the zoo. But this was lock down baby, and I begged to get in.
Jupiter was sitting at the pay phone crying. They weren’t coming. No one was coming. I held her hand on her shoulder, silently. She gasped between tears-” I just need to get over this fucking affliction. Parental addiction! Give me your potion! Give me my ration! Make me sleep! Forget my convictions!”
They ushered me away from her and gave her a handful of little pills. In a few days she was okay. In a few days she went away. She was jumping and flying and laughing and rolling her way outta there.
Lady child Jupiter, let me hold you
In this beautiful prison
where they feed us eggs and berries
Here, you must not run, you must not cry
even though in the kind faces
are rapists and lunatics.
Brief licks of freedom and I am
a child again, pushing the limits
You tore up a room to see what would happen,
hit the ground running
whispering around the edges
of double consciousness
but the darkness lives without.
I am afraid of the men who cut off the heads of women and children
in countries far away
of machetes on buses and bloody heads rolling
to a stop at my feet.
In my mind the circus is setting up and taking down
while making lists and letting the parade get started.
No knights in shining armour
In the end, don’t run off with the first nice man to hold your hand
and save your life.
Hold on, hold on, hold on
you’re going down, down, down.
Walking so close to the edge
you’re star dust.